Dead, Insane, and MS

I love that title, because it all has to do with MS, but yet it doesn’t.  Continue reading and you’ll see why.

I’ll probably lose all the women readers here but did you see “The Walking Dead” last night.  That is by far my favorite show on TV right now.  And most of the guys I talk to love it.  I have yet to come across someone that said, yeah, I watched it but it wasn’t that good.  Either you haven’t watched it, or you love it.  Now the girls might be a different story.  My wife doesn’t like the gory parts and the first few episodes where they were trying to get out of the city were pretty gory.  But now that it has settled down to more of a drama, I think she likes it.  Not loves it, but she likes it.  My brother called me the other day talking about what he heard about it.  Then this morning I was commenting on a couple of posts on friends walls on Facebook about it.  I couldn’t tell you the last time I did that with a TV show.

Insane in the Membrane

I was reading blogs at work and one of them had mentioned the show “Hell on Wheels” which if you’ve seen it, is a western.  And anytime a western is mentioned, this songs kicks me in the head.

I wake up in the mornin'
And I raise my weary head
I got an old coat for a pillow
And the earth was last night's bed
I don't know where I'm goin'
Only God knows where I've been
I'm a devil on the run
A six gun lover
A candle in the wind, yeah

And of course, the chorus.

I'm goin' down in a blaze of glory
Take me now but know the truth
I'm goin' down in a blaze of glory
Lord I never drew first
But I drew first blood
I'm no one's son
Call me young gun

I love that song and I think of western’s because I love “Young Guns” and it’s the main theme song for the movie.  I had that song in my head all morning until I left work.

MS Sucks!!!

Cheri had her day cut out for her.  She had an appointment with her Pain Specialist first thing this morning, then after that appointment, she had to go to two different places to have blood drawn for two different doctors.  I don’t know how she keeps them all apart in her head.  She’ll start talking about a doctor and I usually have to stop her and ask what that particular doctor does.  Pain Specialist, Endo, Neuro, and a couple of more.  I get lost trying to figure out which one she’s talking about.

We had a meeting with a new Neurologist today.  We weren’t happy with our other one, he seemed to want to do what he wanted to do without listening to what we told him.  He was so hooked on what he wanted to do that when we would tell him that it wasn’t working, he didn’t care.  It’ll get better in a couple of week, it’s been freaking 6 months.

We went to a conference or meeting with a local Neurologist who is also a MS specialist.  We both really like her, she listened, she suggested things.  She took time with us, which is a main thing.  She’s going to put Cheri on Copaxone, so as soon as the insurance is cleared and a nurse shows us how to use it, she’ll start it.  Not sure why we need the nurse being we’ve done 4 or 5 different injections already so we pretty much know what we’re doing.  These will be daily so Cheri won’t like that.  I won’t like that, because I hate causing her pain (regardless of what she says) but it has to be done.

I’ve been reading some other MS blogs, patients and caregivers, and I guess I have to feel lucky because right now, she isn’t as bad as a lot of people.  And I can’t imagine these people being in more pain than Cheri is.  She hurts with everything she does, and these other people are even worse than her.  It’s a little scary to know what could happen.  Everybody has MS in different ways so she may not get any worse, but chances are, she’s not going to get any better.  And that’s what scares me the most, the unknown.  We’re doing everything we can to keep her healthy and as active as she can be.  We’ve purchased a wheelchair for those trips to the mall or someplace where we do a lot of walking.  And while I know she absolutely hates being in it, she uses it when she needs to.  We’ve taken it into the schools for functions where she knows the chairs will kick her ass.  So if anything, she’s using it to save her backass.  BTW – Backass is what we call her lower back and upper ass.  That’s where she hurts the most, and all the time.  I rub her anytime she asks and she says it helps, but it certainly doesn’t take the pain away.

So that’s where we are now.  We’ll see what happens with it.  We do a lot of that, wait and see.